Main Article Content
coding, Cutaneous T cell lymphoma
Background: The term “Primary Cutaneous T-cell Lymphoma” (primary CTCL), although used largely interchangeably with mycosis fungoides in the past, actually represents numerous non-Hodgkin lymphomas with highly variable and distinct characteristics. Accuracy of claims-based research studies of CTCL hinge on the precision of ICD-10 coding, but the incidence of imprecise coding for CTCL has not been extensively studied.
Objective: To determine the incidence of imprecise ICD-10 coding in CTCL patients in a large, commercial claims database.
Methods: We analyzed the Marketscan database from October 1, 2015 to December 31, 2018 to determine the proportion of patients designated only with the generic CTCL code in the absence of a code for a more specific diagnosis.
Results: Of 3,953 patients meeting the criteria for inclusion, only 107 (2.7%) had a generic CTCL code without a more specific diagnosis code.
Conclusions: These results suggest that the majority of CTCL claims are precisely coded, although until future studies investigate the accuracy of diagnosis, the results of claims-based studies in the realm of CTCL should be interpreted with caution.
2. Cerroni L: Past, present and future of cutaneous lymphomas. Semin Diagn Pathol 34:3-14, 2017
3. Willemze R, Cerroni L, Kempf W, et al: The 2018 update of the WHO-EORTC classification for primary cutaneous lymphomas. Blood 133:1703-1714, 2019
4. Zic JA: Controversies in the management of the cutaneous T cell lymphomas. Dermatologic therapy 22:407-417, 2009
5. Chiu SY, Shaw JW, Luong TQ, et al: Coding patterns used by ophthalmologists for hydroxychloroquine retinal toxicity. Clin Ophthalmol 12:2261-2265, 2018
6. Palestine AG, Merrill PT, Saleem SM, et al: Assessing the Precision of ICD-10 Codes for Uveitis in 2 Electronic Health Record Systems. JAMA Ophthalmol 136:1186-1190, 2018